Her mum Amanda Turner, 37, said: “The condition is scary because when Sophie’s blood sugar is low she we see a complete change in her. It’s like looking at a completely different child. She gets very hungry and gets the shakes. She has to take extra snacks to school and her hair is also very long because of the treatment. Children have said things to her about her hair without realising it and it isn’t a nice thing to have, but the school have been very good. This new trial has been brilliant and we have now been able to stop the Diazoxide, which is fantastic. We just hope that this treatment will soon be available to all children with congenital hyperinsulinism.”
Sophie Fieldhouse’s long golden hair grows just like the fairytale heroine Rapunzel. The girl from Failsworth has grown her beautiful blonde locks until they reach almost to the ground.
The six year old has a rare and potentially lethal disease called congenital hyperinsulinism. It causes low blood sugar and a drug called Diazoxide is one of the only treatments. It causes her hair to grow very fast. Sophie was just 18-months-old when she was identified with the condition.
Over a dozen children with the condition, including Sophie participated in the new treatment using fish oils. They were given capsules similar to cod liver oil. The new treatment has proved so successful that Sophie no longer has to take Diazoxide.